November 8th PACC Meeting

Upcoming PACC Meeting -- Monday October 10, 2010

What we're here for....

We received a comment today asking for support and information.

The Waligora family down in Naples, FL is reaching out to see if they can make their world a little smaller by finding other families who may have endured the things that they are experiencing right now.

I had a chance to look at their blog, which tugged at my heart and brought tears to my eyes. In one of her posts, Holly puts into words what she hears her little baby, Brooke, saying as she watches her in the hospital. Holly's words and posts are honest and comical at times. If anyone has anything they want to say or any information they want to give to support this family, feel free to write a post, leave a comment here or on their BLOG (website also listed below).

Eric Waligora's comment:

"Hi there. I'm writing to anyone who is familar with a child with DS who has had a heart defect repair. Right now my wife and 4 month old are in All childrens in ST Petersburg, FL having a complete av canal repair. Anyone who can show support please visit her blog at http://waligorafam.blogspot.com " 

Thanks for reading!

BL

Activities

http://www.carolinaparent.com/


I found this website. It's great! It provides lots of information about the different activities going on around the Triangle! It has information about camps, educational activities, fundraisers, parent groups, and much more! Check it out!


Holly

ASHA & MAY= BETTER SPEECH AND HEARING MONTH!!!

For those who do not know, the American Speech-Language-Hearing Association (ASHA) is the Speech-Language Pathologists and Audiologists national organization & May is "Better Speech and Hearing Month"!! I thought this website would be great for anyone to look at; the website is from ASHA.org and it is the link to the Better Speech and Hearing Month part of their website! On this page they have great resources for parents to read through and other helpful information that ASHA provided about speech, language, and hearing disorders. Here it is:

http://www.asha.org/bhsm/


Posted by: Anna Bryant

ADHD Resource

Here is a resource I found for individuals with ADHD. I have observed a lot of children in the school that I interned at with ADHD and thought it would be a good topic to find information on. This website appears to offer a lot of great resources!! There is information for just about anything :)

http://www.chadd.org/


Posted by: Anna Bryant

GERD & LPR

I recently did a presentation on Gastroesophageal Reflux (GERD)and Laryngopharyngeal Reflux (LPR). I thought that the following website would be helpful for parents who think their child might have reflux!

http://www.askdrsears.com/html/10/T106004.asp


http://www.choa.org/default.aspx?id=4405

http://www.entnet.org/HealthInformation/GERD-and-LPR.cfm

http://www.entnet.org/HealthInformation/laryngopharyngealReflux.cfm

http://www.entnet.org/HealthInformation/pediatricGERD.cfm

http://www.entozarks.com/docs/LaryngopharyngealReflux.pdf

http://en.wikipedia.org/wiki/GERD

http://en.wikipedia.org/wiki/Laparoscopic_surgery

http://findarticles.com/p/articles/mi_m0BUM/is_9_81/ai_92281759

http://findarticles.com/p/articles/mi_m0BUM/is_10_87/ai_n31126163/?tag=content;col1

http://www.gastro.vcu.edu/patients/education/digestivedisorders/gastroesophageal_reflux_disease_files/image001.gif/
 
http://www.gerd.com/


http://www.gerd.com/consumer/treatment-gerd.aspx

http://www.lahey.org/PDF/VoiceCenter/VoiceCenter_LPRFactSheet.pdf

http://www.mayoclinic.com/health/esophagitis/DS01154

http://www.medicinenet.com/gastric_emptying_study/article.htm

http://www.medicinenet.com/gerd_in_infants_and_children/article.htm

http://www.med.nyu.edu/voicecenter/conditions/voice/larny_reflux.html

http://pediatrics.about.com/od/acidreflux/a/0707_reflux_rx.htm

http://www.refluxissues.com/ms/guides/gerd_treatments/main.html

http://www.speechpathology.com/articles/article_detail.asp?article_id=258

www.surgery.uthscsa.edu/generalsurgery/nissen.jpg
 
http://www.ucdvoice.org/lpr.html


http://www.uthscsa.edu/oto/lpr.asp

http://www.vasurgery.com/images/general_surgery/gerd.gif

http://video.about.com/heartburn/GERD.htm

http://www.voiceinstituteny.com/Voice/pdf/I%20PDF%20REFLUX/Rx%20Gum%20Chewing.pdf

http://www.voiceinstituteny.com/Voice/pdf/PDF%20III/Prevalence%20of%20esophagitis....pdf

http://web1.tch.harvard.edu/views/august07/treating_acid_reflux_in_infants.html

http://www.webmd.com/heartburn-gerd/tc/gastroesophageal-reflux-disease-gerd-medications

http://www.youtube.com/watch?v=jCcng4gG9AY
http://www.youtube.com/watch?v=URn7f83zpa4&NR=1
 
 
Posted by: Anna Bryant