Cystic Fibrosis
-Cystic Fibrosis Foundation website
-Social networks such as Facebook where there is a page for the Cystic Fibrosis Foundation. On this page, parents, family members, and individuals with CF are able to share their stories and give each another advice. This is also where the users share treatments that are being utilized and new medicines being created.
-http://www.cffliving.com/
- http://www.cysticfibrosis.com/
-Dailystrength.org
-cf.conncoll.edu are more websites that are beneficial because there are forums with multiple topics and assistance for families with CF.
-Carolinas Chapter in Charlotte and Raleigh and the Community Outreach Program that is located in Wilson.
-Great Strides is all around the United States and consists of groups that raise money for awareness of CF by having walks and fundraising events to assist in the research and cure for CF.
- Parent Advocates for Communication in Children (PACC)
- Durham, North Carolina
- PACC is a parent driven support group that has been developed in collaboration with the ARC of Durham County. PACC is committed to empowering families with children with communication impairments and disabilities. PACC holds monthly parent support meetings that address parents’ individual and collective concerns through open and confidential group discussion. Further, it will provide parents with educational and learning tools that will enhance their understanding of communication impairments and disabilities through guest speakers, videos, books, etc.
A Service of:
North Carolina Central University's Department of Communication Disorders
Contact Info
Contact Info:
bbpacc2010@gmail.com